The good period disappered one day after I wrote about it... then chair flew in the air again. Now we are trying a new medication and slowly getting the summer panic going...

Right now E is currently having a better period (of course, I probably destroy that just by writing about it...).
It takes of our energy though, and of the already non existent time for the other kids.. We have to curl, curl, curl and curl even more. Not in big things, but to smooth it out. And our evenings are even more like a fucking parental bootcamp everytime. Schedules and rules, everything in its order, not a second to breeth in between, always bad conscience for the other boys, especially P.

One good thing though, we got a organizing white board from the HAB unit. It has a clock, and it measures and displays time. Day time and night time separately. It can have magnetic pics on it, and we can write on it. It will hopefully help a lot.

Food... not an easy thing

Many of E's problems comes from the fact that he doesn't eat very well. He eats only crappy food, and sugar and so.
Today he once again came home early from school, due to headach, tiredness and stomach pains.

What do you do?????

a lot has happened

I haven't had time to write, but I will start filling in the blanks..

We left Legoland one day early, driving from the hotel at 20.00 in the evening since E was once again throwing a fit.. he screamed, rambled around and tried to escape. The other two was crying. We realised that we couldn't stay where we were, we were getting afraid that someone would call the police..
We drove to Sweden, and gave the kids (mostly E) a little something from MCdonalds on the way. Fot those who gasp in shock when reading that I can only say; shut up, you were not there.
Anyway, we got to a hotel in Malmö, slept, and went home the next morning.

Since then, E has only been worse. We can no longer always see the reason for his outbreaks, like a lack of food or so. At some occations everything has been fine, he has eaten, is rested etc, and he still blows. We got some advice form the specialists here, to let him be when he starts rambling about, to let him break smaller things even, so he gets used to that we do not always come running. That resulted in a chair almost flying through a closed window..
A couple of days later, the same chair flew down the stairs and smashed on the floor.

So much to write, so little time...

The day of the damned..

..that was yesteday..
We arrived at Billund, Denmark, went to Legoland, and then everything blow up in our faces..
Kids with thes diagnoses can't handle those things, I _know_ that, but we have managed before..
*sight*
E couldn't handle that a small family pushed their way before us in a que, and then he had a headache, was thirsty, got to have my drink.. I therefore got dehydrated, and didn't feel good myself.. Then, we were to have dinner, hardly found a suitable restaurante, E went crazy..
It all ended with me having to take him for a walk in the middle of the night, while he hated us, life, and himself.
Bleh